Sharing Stories

Julie Wells, Christchurch, N.Z. writes about: “Sharing Stories” in The Main Central Jin Shin Jyutsu Newsletter, issue Number 78, Fall 2012:

Tom was born in June 2007 with a closed sphincter and blocked bowel. Fecal matter backed up for many weeks before he was diagnosed in October 2007 with Curriano Triad, a rare birth malformation consisting of abnormalities in the anal, sacral and presacral areas. Early diagnosis is critical with this disease as it comes with high mortality rates.

I bumped into my friend (Tom’s Mom) one night at the video store. With a desperate look on her face, she told me what was going on. I thought Jin Shin Jyutsu (JSJ) might be able to help and so invited them to bring Tom (age 4 months) for a visit. They had a few weeks until the consultant’s appointment and so accepted.

Tom’s stomach was so distended that it was affecting his breathing, and so I thought the sessions would initially be about helping to release the obvious blockage. Small amounts of runny discharge would escape during this time but nothing significant. When diagnosis was made we could see the bigger picture. The only way for a complete release was for him to be fitted with a colostomy bag. His parents were shown how to use dilatation techniques which meant easing a large metal rod into his sphincter/bowel every day in preparation for a possible future operation, estimated at two years down the line. This rod increased in diameter as the months went by. It was an enormously distressing time for them all.

In the meantime, the doctors gave Tom an MRI and confirmed that, as per the diagnosis, he had three kidneys and that several presacral masses (growths) were present. The reported prognosis was not good, and they predicted that because of the severity of the disease, he would never be able to walk.

During 2007 and through to August 2008, I continued to work with Tom twice a week for 30-40 minutes each time and also taught his parents JSJ flows and self-help to assist with the treatments at home.

In June 2008 Tom turned one year old. Two days later he pulled himself up and took his first steps! It was a very emotional time, for all of us!

In August 2008 I had to make an urgent trip back to the U.K. The break made me realize that I was feeling “responsible” and that I needed to step back a bit, allowing his Mum to take over more responsibility of Tom’s treatments. She recognized, too, that she did not trust herself to help her son. And so after some reassurance and a few JSJ treatments for Mum, we reduced Tom’s sessions to once a week.

In July 2009 the dreaded day arrived, and Tom was admitted to hospital for the big operation to remove the presacral masses consisting of Meningoceles [protrusion of the meninges through bone to form a cyst] and Teratoma [a tumor composed of various tissues such as bone, hair, and teeth]. I applied JSJ in the days prior to his operation and visited him in the hospital. His Mum also did JSJ continuously before, immediately after the operation and for the duration of his stay.

Tom recovered very quickly from the procedure, and after only three days they said he could be taken for a walk in the park. However, there was a minor setback as that evening he picked up a Rotovirus (a “bug” causing severe sickness). His high temperature was a worry, and he vomited all night. His Mum phoned me 7:00 a.m. that morning, and I gave her some JSJ holds to use. Things cleared up quickly, and pretty soon Tom was allowed to go home – still in half the time expected.

Over all, the consultants are amazed with what they found. At their feedback session they said: “It is a miracle that the nerves were not entwined in the growths!” In their experience of this condition almost all cases will have long-term bladder and sexual function issues. In addition the patients would often need a catheter for the rest of their lives! I believe that it was JSJ that allowed Tom’s body to “let go” and that the treatments enabled the body to literally “give up” the masses for removal.

As always, it was a complete privilege to be the “casual observer” on this arduous journey with my special wee boy and his brave and trusting parents.

Deepest respect and gratitude….

Thank you, Julie.

Thank you, Mary.

Thank you, David.

Gassho, Namaste, Blessings

All issues of The Main Central Jin Shin Jyutsu Newsletter are available at http://www.jsjinc.net.

 

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